A better life for livie

Visit : https://bit.ly/3ni7sFy

We are raising funds for the treatment and care of Olivia, our beautiful baby girl. Little Livie has been diagnosed with a rare and serious genetic neuromuscular condition called spinal muscular atrophy (SMA) type 1.  SMA is caused by a gene deletion which results in deterioration of Livie’s nerve cells connecting her brain and spinal cord to her body’s muscles. There is no cure and Livie has its most severe type. Livie’s muscles used for activities such as crawling, walking, sitting up, moving her head, and even swallowing and breathing, are becoming progressively weaker and shrinking. Without any treatment, little Livie’s condition would continue to deteriorate and it would be unlikely that she would live past her 2nd birthday. Every child with SMA is different and little Livie’s future is very uncertain.

Visit : https://bit.ly/3ni7sFy

Treatment options for little Livie are very limited.  Our best hope for a better life for Livie is a once-off gene therapy called Zolgensma, which is currently only available in USA. It costs approximately US$2,100,000. Studies have shown that Zolgensma can substantially improve quality of life. Livie’s antibody test qualifies her for the treatment. We are against the clock as Zolgensma is only available to children under the age of two years.

Visit: https://bit.ly/3ni7sFy

Please help us

Leave a Reply

Your email address will not be published. Required fields are marked *